图书简介

Chapter 1: Ethics and Research with Children: Introduction to the Second Edition; Eric Kodish and Robert M. Nelson; Chapter 2: Ethical Challenges Related to Participation of Adolescents and Young Adults with Intellectual Disability in Research; Pamela Nathanson, Theodore Schall, and Chris Feudtner; Chapter 3: Ethical Challenges Conducting Pediatric Research in the Era of Scarce Drugs; Yoram Unguru; Chapter 4: Catastrophically ill children, access to unregistered medical interventions and trial recruitment needs: an ethical analysis; Thomas Hartvigsson and Udo Schuklenk; Chapter 5: Ethical Issues in the Neonatal Surfactant, Positive Pressure and Oximetry Randomized Trial; John D. Lantos; Chapter 6: Invasive Placebos, Patient Burdens and Community Advocacy: A Federal Ethics Panel Protocol Review; Donna Snyder, Catherine Lee, Robert Nelson; Chapter 7: When if ever, is it ethical to do research in developing countries that could not be done ethically in developed countries?; Lainie Friedman Ross, MD, PhD; Chapter 8: The Welfare of Children, Research Ethics and the Bucharest Early Intervention Project; Maria Master and Joseph Fins; Chapter 9: Ethical Issues in Genetic Research with Infants: Biospecimen Use and Genome Sequencing; Erin Rothwell and Jeffrey Botkin; Chapter 10: Parental Permission for Neonatal Clinical Trials; Benjamin Wilfond and Anita Shah; Chapter 11: Communication and Decision-Making with Parents and Seriously Ill Children about Phase 1 Research Trials; Melissa K. Cousino, Wynne E. Morrison, and Victoria A. Miller; Chapter 12: Involving Parents and Children in Community Engaged Research: Ethical Considerations; Erin Talati Paquette and Lainie Friedman Ross; Chapter 13: Social Media and Pediatric Research Recruitment; Luke Gelinas and Jennifer Cohn Kesselheim; Chapter 14: Payments for Participation of Children in Research; Douglas S. Diekema; Chapter 15: Clinical innovations near the boundary of viability - the artificial womb; Ryan Antiel and Alan W. Flake; Chapter 16: Synthesis and Concluding Reflections; Robert M. Nelson and Eric Kodish

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