图书简介
Advocacy in Neurology offers a practical perspective on advocacy activities in neurology, aiming to show when and why they are important for neurology.
Section 1: What is advocacy?; 1 Wolfgang Grisold, Walter Struhal, and Thomas Grisold: What is advocacy?; 2 Thomas Grisold and Oliver Lukitsch: Taking an epistemological perspective on advocacy; 3 Wolfgang Maderthaner and Wolfgang Grisold: Advocacy in history and culture; 4 Jan J. Heimans: Ethical issues in neurology; 5 Tissa Wijeratne, Essie Low, and Christopher Neil: Physician, autonomy, and pharmaceutical industry; 6 Mohammad Wasay: Advocacy, campaigning , lobbying: Good or bad?; Section 2: Why is advocacy needed?; 7 Wolfgang Grisold: Knowledge and science is not enough; 8 Mohammad Wasay: Perspectives on advocacy of medical doctors; 9 Hanneke Zwinkels: Advocacy and the perspective of (neurology) nursing; 10 Helen Bulbeck: Patient and caregiver advocacy; 11 Francoise Van Hemelryck: Patient involvement in European cancer societies: The example of ECCO - the European CanCer Organization; 12 Mustapha El Alaoui Faris: Advocacy for neurology in migrants; 13 Apoorva Pauranik: Advocacy for neurology: Local, regional, national; 14 Raad Shakir: Advocacy in the international arena; 15 Jes Olesen and Frederic Destrebecq: Working with others, the lesson of the European Brain Council; 16 Richard Pichler: SOS children’s villages: Re-discovering advocacy to increase relevance and impact. A high level case study; Section 3: What tools can be used for advocacy?; 17 Walter Struhal and Thomas Grisold: Project management techniques for advocates; 18 Wolfgang Grisold, Anna Klicpera, and Thomas Grisold: International advocacy: Case studies and lessons learnt; 19 Birgit Kofler: Using PR tools for advocacy; Section 4: Advocacy in different neurological diseases; 20 Tissa Wijeratne, Sheila Crewther, and David Crewther: Advocacy for stroke; 21 Christoph Thalheim: Two decades of patient advocacy in Multiple Sclerosis: The success story of the European MS Platform; 22 Albert C. Ludolph: Advocacy in amyotrophic lateral sclerosis; 23 Elaine C. Jones and John D. England: Neuromuscular disorders and advocacy; 24 Francesca Mancini and Carlo Colosimo: Advocacy for movement disorders; 25 Riccardo Soffietti, Christine Marosi, Roberta Ruda, and Wolfgang Grisold: Advocacy for brain tumours; 26 Gorazd B. Stokin: Advocacy in dementia; 27 Fritz Zimprich: Advocating for orphan diseases in neurology; 28 David Oliver: Palliative care; 29 Jules C. Beal and Solomon L. Moshe: Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy; 30 Timothy J. Steiner and Jes Olesen: Advocacy for patients with headache; 31 Ligia Onofrei and A. Gordon Smith: Advocacy for patients with neuropathic pain; Section 5: Outlook, follow-up, results, ending, conclusion, and debriefing; 32 Wolfgang Grisold and Thomas Grisold: Continuation or ending and ’debriefing’; 33 Wolfgang Grisold, Walter Struhal, and Thomas Grisold: Results, outlook, and goals of this book
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