图书简介
This six-volume collection explores both the contextual and the practical sides of research ethics. The focus of the three volumes on Context is unequivocally cross-disciplinary, containing landmark papers which explore ethics issues in context across all research that involves human subjects, taking a look at aspects such as consent, sensitivity, protection from harm, and data protection. The three volumes on Practice look at the distinction between design and implementation, exploring how in the ‘field’, ethical issues can change and new issues can emerge. What are and are not ethical issues, and the contested and evolving nature of ethics, are a couple of key aspects considered in the literature in these volumes, and particularly in relation to the different ethical strategies utilised by researchers. As a single resource, this Major Work provides unparalleled coverage of the most significant literature to emerge from this field of study over the past few decades. The papers selected to appear in the volumes are contextualised by introductory passages written by the editor, exploring the rationale behind the selection, the key themes and issues. Part I: Context Volume One: Historical Context Volume Two: Classic Cases Redux Volume Three: Core Concepts Part II: Practice Volume One: Power, Politics and Reflexivity Volume Two: Covert Research Volume Three: Contemporary Issues and Challenges
VOLUME ONE: HISTORICAL CONTEXT \\ Medical Ethics: Principles, Persons, and Perspectives: From Controversy to ConversationK. Boyd \\ Human Experimentation in Historical and Ethical PerspectivesNorman Howard-Jones \\ Ethics and Clinical ResearchHenry Beecher \\ Exploitation and Enrichment: The Paradox of Medical ExperimentationM. Brazier \\ Ethical Aspects of Experimentation with Human SubjectsHenry Beecher \\ Human Experimentation: Historical Perspective of Breaches of Ethics in US Health CareElizabeth Layman \\ Protection of Human Subjects of Research: Recent Developments and Future Prospects for the Social SciencesEleanor Singer and Felice Levine \\ Learning from Tuskegee: From Moral Outrage to Integrative EthicsAnn Gallagher \\ The Nuremberg Code \\ The Belmont ReportThe National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research \\ Universal Declaration on Bioethics and Human RightsUNESCO \\ WMA International Code of Medical EthicsWorld Medical Association \\ WMA Declaration of Helsinki – Ethical Principles for Medical Research Involving Human SubjectsWorld Medical Association \\ Ethics and Standards in Medicine – Much More Than Abortion and EuthanasiaBryan Vernon \\ Laying Ethical Foundations for Clinical ResearchJon Harkness, Susan Lederer and Daniel Wikler \\ On Ethical Principles for Social ResearchMartyn Hammersley \\ Between the Accountable and the Auditable: Ethics and Ethical Governance in the Social SciencesNathan Emmerich \\ Creeping Ethical Regulation and the Strangling of ResearchMartyn Hammersley \\ The Ethical Case against Ethical Regulation in Humanities and Social Science ResearchRobert Dingwall \\ Adjudicating Entitlements: The Emerging Discourses of Research Ethics BoardsElvi Whittaker \\ IRB Reformation: Is Unfettered Access the Answer?Kristine Florczak and Nancy Lockie \\ Protecting Vulnerable Research Participants: A Foucault-Inspired Analysis of Ethics CommitteesTruls Juritzen, Harald Grimen and Kristin Heggen \\ An Alternative Ethics? Justice and Care as Guiding Principles for Qualitative ResearchMartyn Hammersley and Anna Traianou \\ VOLUME TWO: CLASSIC CASES REDUX \\ A Historical Interpretation of Deceptive Experiments in American PsychologyC. Herrera \\ Behavioral Study of ObedienceStanley Milgram \\ Some Thoughts on Ethics of Research: After Reading Milgram’s “Behavioral Study of Obedience”Diana Baumrind \\ Issues in the Study of Obedience: A Reply to BaumrindStanley Milgram \\ On the Ethics of Intervention in Human Psychological Research: With Special Reference to the Stanford Prison ExperimentPhilip Zimbardo \\ Controversial Psychological Research Methods and Their Influence on the Development of Formal Ethical GuidelinesKatie Youngpeter \\ “Torture at Yale”: Experimental Subjects, Laboratory Torment and the “Rehabilitation” of Milgram’s “Obedience to Authority”Ian Nicholson \\ What Can Milgram and Zimbardo Teach Ethics Committees and Qualitative Researchers about Minimizing Harm?Martin Tolich \\ Ethical Issues and Guidelines for Conducting Data Analysis in Psychological ResearchRachel Wasserman \\ On Being Sane in Insane PlacesD. Rosenhan \\ Laud Humphreys and Research EthicsEarl Babbie \\ Controversies Surrounding Laud Humphreys’ Tearoom Trade: An Unsettling Example of Politics and Power in Methodological CritiquesMichael Lenza \\ Whose Side Are We On?Howard Becker \\ Protecting Research Subjects and Unintended Consequences: The Effect of Guarantees of ConfidentialityF.G. Reamer \\ The Myth of Informed Consent: In Daily Practice and in Clinical TrialsWilliam Silverman \\ The Ethics of Open MethodsRoger Homan \\ Subject, Project or Self – Thoughts in Ethical Dilemmas for Social and Medical ResearchersJane Batchelor and Catherine Briggs \\ The Ethics of EthnographyElizabeth Murphy and Robert Dingwall \\ Researching Researchers: Lessons for Research EthicsRose Wiles, Vikki Charles, Graham Crow and Sue Heath \\ VOLUME THREE: CORE CONCEPTS \\ Ethics and the Practice of Qualitative ResearchIan Shaw \\ Empty Ethics: The Problem with Informed ConsentOonagh Corrigan \\ Informed Consent in International ResearchPatricia Marshall \\ Exploring the Meaning of Consent: Participation in Research and Beliefs about Risks and BenefitsEleanor Singer \\ What Do Prospective Research Participants Want to Know? What Do They Assume They Know Already?James Walkup and Elinor Bock \\ Ethics at Home: Informed Consent in Your Own BackyardSusan Malone \\ Improving Consent with Minority Participant from Researcher and Community SurveysSandra Crouse Quinn et al. \\ Research Ethics and Data Quality: The Implications of Informed ConsentGraham Crow, Rose Wiles, Sue Heath and Vikki Charles \\ Informed Consent, Gatekeepers and Go-Betweens: Negotiating Consent in Child- and Youth-Centred InstitutionsSue Heath, Vikki Charles, Graham Crow and Rose Wiles \\ An Experiment with a Confidentiality Reminder in a Telephone SurveyJ. Frey \\ Confidentiality for Whom?Ian Robinson \\ Confidentiality and Autonomy: The Challenge(s) of Offering Research Participants a Choice of Disclosing Their IdentityJames Giordano et al. \\ Against Confidentiality? Privacy, Safety and the Public Good in Professional CommunicationsChris Clark \\ Talking about Suicide: Confidentiality and Anonymity in Qualitative ResearchSusanne Gibson, Outi Benson and Sarah Brand \\ Dilemmas in Doing Insider Research in Professional EducationCaroline Humphrey \\ Whose Data Are They Anyway? Practical, Legal and Ethical Issues in Archiving Qualitative Research DataOdette Parry and Natasha Mauthner \\ Some Ethical and Methodological Issues in Research with People with Learning DifficultiesKirsten Stalker \\ Research with Children: The Same or Different from Research with Adults?Samantha Punch \\ The Ethical and Methodological Complexities of Doing Research with ‘Vulnerable’ Young PeopleGill Valentine, Ruth Butler and Tracey Skelton \\ The Ethical Maze: Finding an Inclusive Path towards Gaining Children’s Agreement to Research ParticipationAlison Cocks \\ Old Methods and New Technologies: Social Media and Shifts in Power in Qualitative ResearchJennifer Reich \\ Anonymisation and Visual Images: Issues of Respect, ‘Voice’ and ‘Protection’Rose Wiles et al. \\ VOLUME FOUR: POWER, POLITICS AND REFLEXIVITY \\ Ethical Problems in Studying a Politically Sensitive and Deviant CommunityLee Rainwater and David J. Pittman \\ Guilty Knowledge, Dirty Hands, and Other Ethical Dilemmas: The Hazards of Contract ResearchDavid Fetterman \\ Sensitivity as a Problem in Field Research: A Study of Routine Policing in Northern IrelandJohn D. Brewer \\ On Being Partisan in Non-Partisan Settings: Field Research and the Politically CommittedS. Grills \\ Blowing the Whistle on Police Violence: Gender, Ethnography and EthicsLouise Westmarland \\ Ethical and Political Issues in Contemporary Research RelationshipsRachel Aldred \\ Research Ethics in Victimization Studies: Widening the LensJames J. Clark and Robert Walker \\ Researching Sensitive and Emotive Topics: The Participants’ VoiceJacqueline L. Crowther and Mari Lloyd-Williams \\ Picture This . . . Safety, Dignity, and Voice—Ethical Research with Children: Practical Considerations for the Reflexive ResearcherShanon K. Phelan and Elizabeth Anne Kinsella \\ Researching Others: Epistemology, Experience, Standpoints, and ParticipationBarbara Fawcett and Jeff Hearn \\ ‘Living’ Ethical Dilemmas for Researchers When Researching with ChildrenLuigina Mortari and Deborah Harcourt \\ Dissonant Alignments: The Ethics and Politics of Researching State InstitutionsAnne Lavanchy \\ What Is Right? Ethics in Intellectual Disabilities ResearchKatherine McDonald and Colleen A. Kidney \\ Balancing Ethics and Quality in Educational Research – The Ethical Matrix MethodReidun Tangen \\ Exploring Participant-centred Reflexivity in the Research InterviewKathleen Riach \\ The Researcher as Hooligan: Where ‘Participant’ Observation Means Breaking the LawGeoff Pearson \\ The Ethical and Methodological Challenges of Social Work Research with Participants Who Fear Retribution: To ‘Do No Harm’Gabrielle Drake \\ Ethics in Educational Research: Introducing a Methodological Tool for Effective Ethical AnalysisKris Stutchbury and Alison Fox \\ Everyday Ethics in Community-based Participatory ResearchSarah Banks et al. \\ Children and School-based Research: ‘Informed Consent’ or ‘Educated Consent’?Miriam David, Rosalind Edwards and Pam Alldred \\ ‘Going Deep’ and ‘Giving Back’: Strategies for Exceeding Ethical Expectations When Researching amongst Vulnerable YouthSharlene Swartz \\ VOLUME FIVE: COVERT RESEARCH \\ The Ethics of Covert MethodsRoger Homan \\ Comment on ‘The Ethics of Covert Methods’Martin Bulmer \\ Covert Participant Observation: On Its Nature and PracticeRichard A. Hilbert \\ The Research Ethics of Pseudo-Patient Studies – A New Look at the Merits of Covert Ethnographic MethodsMartin Bulmer \\ Dirty Data and Investigative MethodsDavid Shulman \\ Covert Participant Observation: Reconsidering the Least Used MethodMitch Miller \\ A Clash of Methodology and Ethics in ‘Undercover’ Social ScienceC.D. Herrera \\ Covert Participant Observation of a Deviant Community: Justifying the Use of DeceptionMatthew A. Lauder \\ Parts Unknown: Undercover Ethnography of the Organs-Trafficking UnderworldNancy Scheper-Hughes \\ Is There a Place for Covert Research Methods in Criminology?Helen M. Wells \\ Seeking Informed Consent: Reflections on Research PracticeChih Hoong Sin \\ Between Overt and Covert Research: Concealment and Disclosure in an Ethnographic Study of Commercial HospitalityPeter Lugosi \\ Research Ethics in the UK: What Can Sociology Learn from Health?Sue Richardson and Miriam McMullan \\ Inside the “Pro-ana” Community: A Covert Online Participant ObservationSarah R. Brotsky and David Giles \\ The Art and Politics of Covert Research: Doing ‘Situated Ethics’ in the FieldDavid Calvey \\ Ethical Covert ResearchPaul Spicker \\ Much Ado about Deception: Consequences of Deceiving Research Participants in the Social SciencesDavide Barrera and Brent Simpson \\ VOLUME SIX: CONTEMPORARY ISSUES AND CHALLENGES \\ A Review of Research Ethics in Internet-based ResearchIan Convery and Diane Cox \\ Intermezzo Ethics and Information: An Encyclopedic OverviewRobert Hauptman \\ Protecting Human Subjects in Internet ResearchLarry A. Pace and Mary Livingston \\ Ethical Dilemmas in Research on Internet CommunitiesSarah Flicker, Dave Haans and Harvey Skinner \\ The Ethics of Internet ResearchRebecca Enyon, Jenny Fry and Ralph Schroeder \\ Digital Ethnography: An Examination of the Use of New Technologies for Social ResearchDhiraj Murthy \\ Ethnographic Approaches to the Internet and Computer-Mediated CommunicationAngela Cora Garcia, Alecea Standlee, Jennifer Bechkoff and Yan Cui \\ Exploring Ethical and Methodological Issues in Internet-based Research with AdolescentsHeather T. Battles \\ Private Conversations and Public Audiences: Exploring the Ethical Implications of Using Mobile Telephones to Research Young People’s LivesDenise Hinton \\ Talking Sexuality Online – Technical, Methodological and Ethical Considerations of Online Research with Sexual Minority YouthPaul Willis \\ Ethics and Social MediaConstance Milton \\ Personal Internet Archives and EthicsStine Lomborg \\ Internet-Mediated Technologies and Mixed Methods Research: Problems and ProspectsSharlene Hesse-Biber and Amy Griffin \\ Taking and Using: Ethical Issues of Photographs for Research PurposesLuc Pauwels \\ Ethical Issues in Image-based ResearchAndrew Clark, Jon Prosser and Rose Wiles \\ Just Images: Aesthetics, Ethics and Visual CriminologyEamonn Carrabine \\ Is It the End for Anonymity As We Know It? A Critical Examination of the Ethical Principle of Anonymity in the Context of 21st Century Demands on the Qualitative ResearcherLiz Tilley and Kate Woodthorpe \\ ‘Caught in the Act’: Ethics Committee Review and Researching the Sexual Culture of SchoolsLouisa Allen \\ The Betrayal of Research Confidentiality in British SociologyJohn Lowman and Ted Palys \\ Ethical Use of Social Media to Facilitate Qualitative ResearchBelinda Lunnay et al. \\ Big Data EthicsAndrej Zwitter
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